Jordan's family.
From 15-minute phone calls in the dark to a respite worker who had Jordan's baseline before she needed it — and a pulmonologist who finally had real data to work from.
Before Arcolia
A week that wore Sarah down.
01
Notes everywhere, narrative nowhere
Sarah kept Jordan's medical history across a spiral notebook, a shared Google Doc, and a Notes app on her phone. None of them were ever fully current. Before pulmonology appointments, she'd spend an hour trying to build a coherent picture of what had changed. She always felt like she was missing something. She usually was.
02
Jordan's first overnight without her
They'd found a respite worker they trusted. She'd trained on the cough assist, the BiPAP, all of it. The first overnight with Jordan, at 10pm, she called Sarah. Jordan's cough assist session had produced more resistance than usual. His O2 was reading 93. She didn't know if that was within his normal range or not. Sarah knew 93 was fine for Jordan when he was tired and hadn't cleared well during the day. But none of that was written anywhere the worker could read. Sarah talked her through it for 15 minutes — Jordan's baseline, what normal sounds like for him, when to escalate, when to wait. The call resolved. It shouldn't have taken 15 minutes.
03
'What's his O2 dropping to after PT?'
The pulmonologist asked. Sarah knew it had been worse lately — the dips deeper, the recovery longer. She had six weeks of Tuesday observations in her head but not on paper. She described the pattern as best she could: 'It comes back up, it just takes a little longer than it used to.' The pulmonologist adjusted the cough assist frequency based on that estimate. The decision deserved real data.
Then Sarah found Arcolia.
Same weeks. A lighter weight.
With Arcolia
The same moments, handled.
Six weeks of PT sessions, documented
After PT each Tuesday, Sarah says what happened on the drive home — how Jordan tolerated the session, the O2 readings, anything the therapist flagged. Arcolia structures it and adds it to the timeline. It's done before she parks. Six sessions in, the pattern is already visible — not an impression, a record.
The respite worker had what she needed before she needed it
Jordan's Emergency Passport has his respiratory profile: baseline O2 range, cough assist settings, BiPAP prescription, what normal variation looks like for him, and who to call. Offline-ready, no login required. Before the next overnight, Sarah shared the QR code. The worker opened it before Jordan's bedtime routine. The next time something felt slightly off, she had his baseline in hand — not a 15-minute phone call to make.
The O2 pattern, on paper
The appointment started differently. The pulmonologist had the data before Sarah said anything — six PT sessions logged, the O2 drop pattern, the recovery times, three questions surfaced from her notes. The decision to adjust cough assist frequency was made on real documentation. The conversation went somewhere the previous ones hadn't.
What made the difference
Daily Dump
Voice or text — captured after PT, after a hard day, after a great milestone. Arcolia structures it automatically so nothing has to be reconstructed later.
Emergency Passport
Jordan's full respiratory profile — baseline O2 range, cough assist settings, BiPAP prescription, and what normal looks like for him — in one offline-ready card. The person caring for him doesn't need to call to ask.
Clinic Brief
30 days of notes synthesized into a specialist-ready brief. The neuromuscular team gets the full picture. The appointment gets to go somewhere.
“The first time I really felt it was when the respite worker texted instead of called. ‘Jordan's settled, O2 looks normal for him.’ She'd looked up his baseline on the card. She knew what normal was without asking me. That was the first time in a long time I actually slept.”
Sarah · Jordan's mom · SMA Type 2
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