A note from the founder
My child was diagnosed with Dravet syndrome at 18 months old. In the years since, I've lived the parallel job that comes with a complex medical diagnosis — one no one hired me for and no one can take over.
I was spending entire weekends reconstructing timelines before appointments. I was walking into specialist offices underprepared, watching doctors make decisions with incomplete pictures — not because the information didn't exist, but because I couldn't hold it all at once. I knew my child better than anyone in that room. But I couldn't always prove it.
When I started showing up with organized records, something shifted. Doctors listened differently. Conversations moved faster. Questions I'd been carrying for months finally got answered — because I could point to a pattern, not just describe a feeling.
Arcolia exists because that shift shouldn't require a weekend of work. It should happen automatically, from the notes you're already keeping. The goal isn't just efficiency. It's the smaller emotional weight of knowing that when something happens — at 2am, at school, in a waiting room — your records are ready, your passport is current, and you don't have to rebuild everything from memory under pressure.
You deserve tools that understand your life. I hope this helps.
Founder, Arcolia
Dravet parent